2 Year Old Jude is Conquering RCDP & Inspiring Others Along the Way

Baby Jude with Mom Hannah
& Dad Sullivan (Sully)
Photo Credit: http://www.facebook.com/prayingforjudesullivanpeters

   So, tonight I’m going tell you about a family with a little boy very near to my heart. Mr. & Mrs. Peters were in their early 20’s when their son, Jude Sullivan Peters was welcomed into the world. But Jude’s family was given very grim odds at Jude surviving beyond his birth and then at living beyond the first two weeks of his life at all. .Jude was diagnosed as having Rhizomelic Chondrodysplasia Punctata, Type 1 (RCDP 1), at just 2 days old. RCDP is a very rare & lethal form of dwarfism, fewer than 60 kids worldwide live with RCDP. Jude’s family was told that the condition is characterized by short stature, contracted joints & muscles, and low plasmalogen levels in the body. And it was not likely that he’d survive beyond two weeks of life. Doctors then sent the family home with comfort care instructions & with Jude on hospice. That was 2 years ago! 🙂

Pictured here are 14 of the 53 kids
 living with RCDP worldwide.
To my knowledge 13 of them are still living.
Little Reece (in the red glasses & white jean shorts) recently passed away.
Photo Credit: http://www.facebook.com/prayingforjudesullivanpeters

     Today, Jude is as joyful as ever…despite the pain and struggle his condition brings, Jude is smiling through it all. Jude and his family and the others living with RCDP and the familes behind them are true examples of Nehemiah 8:10 NIV, in my opinion.
  This is the verse which says, Nehemiah said, “Go and enjoy choice food and sweet drinks, and send some to those who have nothing prepared. This day is holy to our Lord. Do not grieve, for the joy of the LORD is your strength.” I know without the shadow of a doubt that our Heavenly Father is Jude’s family’s strength because “tomorrow is not promised” is not just a simple saying in the family’s mind, it is reality. And still they lean hard on Christ. They are so very strong in their faith they inspire me so much.

      You may be wondering why Jude’s story has such an impact on me. Well, like many of you, I’d never heard of Jude’s condition before joining the family’s facebook prayer page in late 2014, (if I recall correctly). At which point Jude was about 8 months old. He had just gotten a back brace, leg braces, & arm splints. My heart is destroyed when I see pictures of him in these things or whenever I think that Jude must wear his braces everyday. And still he endures all of them with a smile that has yet to break or fade from sight. Jude’s joy brings the the sun from beneath the clouds for me when I’m having a “bad day” or a “hard day”. 

Even in all the painful bracing Jude is smiling.
Photo Credit: http://www.facebook.com/prayingforjudesullivanpeters

     In my life, Jude is an instrument God uses to show that, even amidst the pain in this life, there is lanterns shining in a light of joy as well. There are not enough “thank you” messages I could write The Peters’ Family for sharing Jude’s message of God’s Joy with the world. Through following Jude’s journey I have rediscovered that joy is in every situation, regardless of circumstances.


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