Hello to all of my followers & readers!
In recent blog postings I have talked about the procedure that I will soon undergo called a mitrofanoff procedure. As I figure, people who read my blog are other people affected by CP themselves or parents/ caregivers of a person living with cerebral palsy, I wanted to explain a little bit more about this subject. Especially if you are someone who has abilities similar to mine or care for someone who has abilities similar to mine, this may be a fantastic option for later down the road when that child or children decide they want more independence especially in the restroom.
First off let me say this. This procedure is not always done for the end result of self-sufficiency and Independence. In fact, it is very very rarely done on people with cerebral palsy, let alone people my age. Most of the time this procedure is done on children anywhere from Age 3 til 5, with some sort of spinal cord injuries such as spina bifida or other forms of paralysis. We chose to do this because it will allow me more independence where at this moment I need it most. Because without it, I am completely dependent on my family to get to and from a toilet.
Every patient story and journey to this option is very different. The above paragraph just described in one sentence my need for this in my case. I can tell you this was not an easy decision to come to and it took 7/8 years of research to find this option. That is why I am so passionate about wanting to get the word out about this option for families who need it. So here in a nutshell, is what the procedure basically is.
The mitrofanoff is essentially a hole in the stomach also referred to as a “stoma”. This stoma a standard urinary catheter to pass through the stomach and into the bladder in order to empty the bladder. The mitrofanoff procedure is in fact a surgery that is quite invasive. A surgeon has two options in order to create the canal which the catheter passes through to get to the bladder. If the appendix is healthy, big enough, and available a surgeon would use the appendix to create this canal. If the appendix for any reason is unavailable for use of creating the canal, the surgeon uses a portion of the patient’s bowel to create the canal. Thus, eventually allowing the patient a quick and the more easy passing of urine out of the body.
This is most often done for people with some sort of paralysis as I stated above. And this option is presented when that person is unable to use normal method of catheterizing such as vaginal catheterization.
To read and research more information please follow the link below. This link will take you to an article that explains exactly what the mitrofanoff it is and the benefits of it. I hope you all have a very blessed day and thank you for reading this post & the article that follows. 🙂 ♡